You develop a strong stomach. I promise. I am the kind of person who gets weak at the sight of blood, and nauseous thinking about broken bones, or anything to do with eye balls. I remember the feeling that I had approaching my surgery date, not so much nervous for the actual procedure but for … Continue reading Having The Guts
I strongly believe that talking about your disease and your experience when you want to and on your own terms is very important for your mental health. I found that ignoring it only made everything worse.
I have had five nervous pees. That is four more than usual. Life is like a game: we make decisions and they have certain consequences. Everyone lives by different rules and that satisfies their morals and validates their judgments. But at the end of the day, there is one objective to life, like winning a game in a round-robin tournament: survive.
It's June. I am officially 21 days from a surgery that is going to change my life. And by that I mean, a surgery that is going to save my life – I mean who wants to risk living on borrowed time? Proactive measures are a must, and here I go. I have just received … Continue reading I Am Ready
The results of my genetics test have been revealed: DNA Finding: APC, EXON08, c.847C>T, p.Arg283X, Heterozygous, Pathogenic Official Diagnosis: Familial Adenomatous Polyposis Apparently, the “T” in the c.847C>T should be a C. Who knew the alphabet could cause such troubles. Of course, this is me being a bit jaded. It was not unexpected, … Continue reading Result: Positive.
It’s funny how time is flying: Monday comes, then suddenly I wake up and it’s Friday. Yet, while this is happening the months seem to be moving unbearably slow. I know it has been a while since I have written, but sometimes one just needs a break. Not to say I have had much of … Continue reading The Date
Picture this: Windy, stormy, rainy day, but you have this deep motivated and enthusiastic feeling because you are at a point you’re turning your life around. And then a “No Caller ID” vibrates in your pocket. I knew it was the doctor, and was tempted to ignore it. I swallow hard, and answer, knowing they … Continue reading When It Rains, It Pours
Live gives us a deck of cards. Despite all the difficult cards we are slapped with in the face, we must hold on and hope for those Aces. I still have 4 in my deck.
The strange combination of words couldn't more suitably capture the essence and purpose of the session. The Genetics Counselling discussed everything about FAP and how my life will be in the future. There are 3 aspects of genetics counselling worth knowing.
Gardner Syndrome is known in my family, but there is much more to learn about it. Searching Gardner Syndrome can be very overwhelming, especially if it is you, like me, who is facing the disease.